Progress?

It looks as if the tumor is making a bit of progress, and not exactly in my favor.  On Thursday evening I sent an e-mail to Dawn, our Johns Hopkins Physician Assistant, seeking confirmation that my MRI CD had been received.  I pay attention to walking the line between annoying and advocate and ten days after “send off” seemed safely on the advocate side.  I expected an answer on Friday, but an hour after pressing send, Dawn responded: 

“Yes, CD was received, uploaded on 2/16 and read today. Prel read is of stable disease, though measurements are up just slightly. I will try to have Dr. Rigamonti review this Tuesday, 2/22 and get back to you. He has been out of the country and has a large volume to review. We do not need to do anything urgently but will give you our best recommendation for timeframe to consider treatment or another MRI.”

So, I should have some additional information and guidance next week.  Meanwhile life is always busy and interesting and I sometimes forget that my brain is ticking.

With love,

Karen