Today's appointments at Johns Hopkins were excellent and informative but had an outcome that was one we had not even considered. I am still absorbing and coming to terms with its meaning. It is late and I don't think I can write about it clearly tonight, but I am concerned that some of you may worry if you don't hear from me. Below is a copy of the e-mail Ed sent out to family and friends. It gives few details but is the gist of today's unexpected outcome.
With much love,
Karen
From Ed
Just a brief message. After a long meeting with some wonderful doctors and staff at Johns Hopkins today, we are going to put off treatment for at least three months. At that point Karen would have a second MRI that could show if her tumor is actually growing. Acoustic neuromas are generally very slow growing and may be dormant in at least 20% of cases. The consequences of either surgery or radiation may be worse than her current symptoms, so waiting and checking later is the best option. It wasn't something that we had really considered but the main doctor, who has handled more than 500 cases, strongly recommended this course.
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